When Something Feels Off: Early Warning Signs Before a Dementia Crisis

When Something Feels Off: Early Warning Signs Before a Dementia Crisis

November 07, 20255 min read

You know that feeling when something’s just… off?

Mom’s more confused than usual. Dad’s short-tempered about things that never used to bother him. Or maybe your loved one is sleeping more than normal and you can’t shake the sense that something’s brewing under the surface.

If this sounds familiar, you’re not imagining it — and you’re not overreacting. After years of working with families through every stage of dementia, I’ve learned that caregivers almost always sense change before anyone else does. The key is learning how to read those instincts so you can act before a small change turns into a full-blown crisis.

The Body Keeps Score — Physical Changes That Whisper Before They Shout

Dementia makes it harder for your loved one to tell you what hurts or feels “off,” but the body still sends clues.

Here’s what to watch for:

  • Changes in balance or gait. Are they suddenly holding the wall, taking smaller steps, or sitting down more often? Sometimes a urinary infection, dehydration, or medication reaction shows up in their walk before it ever shows up in a lab.

  • Sleep pattern changes. Restless nights or constant daytime naps can signal infection, discomfort, or early signs of delirium.

  • Appetite shifts. Pushing food around, skipping favorites, or forgetting how to use utensils can all mean something deeper than “just not hungry.”

A daughter once told me, “Mom just seems… different.” When we looked closer, her mom had started favoring one side as she walked. Three days later she was diagnosed with a UTI. Her gut was right — she just needed to know what to look for.

The Emotional Storm Before the Behavioral Hurricane

Behavioral changes rarely happen overnight. There are emotional tremors first.

  • Increased anxiety or restlessness. Pacing, hand-wringing, or repeatedly asking questions with new urgency often show their brain is sensing something’s wrong.

  • Emotional brittleness. Crying at commercials, frustration over small things, or quick irritability means their emotional reserves are running low.

  • Withdrawal or personality change. A once-social person avoiding family gatherings isn’t “just tired.” They may feel overwhelmed or embarrassed by changes they can’t name.

Behavior changes don’t happen in a vacuum — there’s almost always an underlying cause: pain, infection, medication side effects, even sensory overload. Spotting the shift early lets you fix the cause, not just manage the fallout.

The Caregiver Warning System — Your Own Body’s Signals

This part surprises most families: you are part of the early warning system.

When your person’s needs begin to shift, your body usually knows first.
Are you more anxious lately? Snapping at people? Feeling tense or losing sleep for no reason? That’s not you “losing patience.” It’s your nervous system mirroring the changes in theirs.

Your exhaustion is data. Your frustration is information. These signals mean the current plan may no longer fit. Pause and reassess before burnout forces you to.

Environmental and Social Red Flags

Your loved one’s world also tells a story:

  • Getting lost in familiar rooms or standing in the kitchen unsure what to do next.

  • Withdrawing from phone calls or conversations they used to enjoy.

  • Suddenly finding normal noise or activity overwhelming.

These are cues that the brain is working harder to process information. Small adjustments — decluttering, simplifying routines, reducing noise — can keep them (and you) calmer and safer.

Creating Your Personal Early-Warning System

Start by trusting what you feel. Keep a quick-note journal — nothing fancy.
Write what you notice:

  • “Dad was quieter at dinner.”

  • “Mom woke twice last night.”

  • “I felt unusually anxious this morning.”

Look for patterns over time, not single bad days. Three days of little clues often equal one big change on the horizon. When patterns stack up, reach out: call the doctor, bring in respite help, or simplify routines before exhaustion and confusion escalate.

The Gap the System Doesn’t Fill

Most caregivers were never taught how to see these changes coming. The healthcare system focuses on diagnosis and treatment — not on the subtle shifts that happen in daily life.

That’s the gap.

I created the Caregiver Gap Report to help families close it — so you can understand what professionals often miss and take confident action sooner.

👉 Download your free Caregiver Gap Report here.

From Reactive to Responsive

You can’t prevent every crisis. But you can see them coming.

When you listen to your instincts, track what you notice, and make small adjustments early, you move from reacting in panic to responding with purpose.

The caregivers who thrive aren’t the ones who control every outcome — they’re the ones who stay curious, connected, and supported.

Your person is counting on you to be calm, confident, and compassionate — not perfect. And the more you honor your own signals along the way, the better care you can give.

The Caregiver Gap Report

Recognizing these early warning signs is powerful, but knowing what to do next is what truly changes everything.

Most caregivers are left to figure things out on their own — and that’s exactly the gap I help families close. The medical system doesn’t teach how to interpret these subtle changes, or how to act before crisis mode hits.

That’s why I created the Caregiver Gap Report — a free guide that shows you what’s missing from traditional dementia care and how to fill those gaps with confidence and clarity.

👉 Click here to download your free Caregiver Gap Report and start turning awareness into action today.

💜 Caring for you while you care for them.

Laura is a nurse practitioner, caregiver advocate, and your guide through the often overwhelming journey of dementia care. With over 25 years of experience in the medical field and a deep personal connection to caregiving, her mission is to provide the support, knowledge, and community you need to care for your loved one with confidence and compassion.

Laura Wilkerson

Laura is a nurse practitioner, caregiver advocate, and your guide through the often overwhelming journey of dementia care. With over 25 years of experience in the medical field and a deep personal connection to caregiving, her mission is to provide the support, knowledge, and community you need to care for your loved one with confidence and compassion.

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