Dementia Caregiving

How the Healthcare System Is Setting Dementia Caregivers Up to Struggle

June 27, 20253 min read

If you’re caring for someone with dementia and constantly feel like you're dropping the ball — you're not alone.
And more importantly:
you’re not failing. The system is.

Dementia caregiving is one of the most complex roles anyone can step into. But instead of support, most caregivers are met with a disconnected, outdated healthcare system that simply wasn’t designed for what you’re going through.

Let’s break down why that is — and what you can do about it.

The System Wasn't Built for Long-Term Dementia Care

Most of our healthcare model is built around short-term fixes: hospital stays, infections, quick recoveries.
But dementia is chronic. It evolves. It requires coordinated, whole-person care — and that’s something the current system struggles to provide.

So when you feel like no one’s helping you plan ahead… they’re not. Because most of them weren’t trained to.

Family Caregivers Are Given an Unfair Job Description

From the moment a loved one is diagnosed, caregivers are expected to:

  • Manage medications

  • Navigate behaviors

  • Schedule and coordinate care

  • Become a medical advocate

  • Make legal and financial decisions
    …often with zero training and little guidance.

You are not unqualified. You are unsupported.

Providers Often Miss the REAL Issue

Even the most caring professionals mean well — but many doctors, nurses, and agencies simply haven’t been trained in how to respond to dementia-related behaviors.

That leads to:

  • Mislabeling (e.g., “combative” instead of anxious or confused)

  • Overprescribing medications

  • Ignoring family concerns

When you leave appointments feeling unheard or more confused than when you arrived, it’s not because you’re doing something wrong. It’s because the system left you to interpret a language no one taught you.

The Guilt You Feel Isn't Yours To Carry

When caregivers feel overwhelmed, we often turn inward:
“Maybe I should’ve done more.”
“Maybe I’m just not good at this.”
“Maybe I’m the problem.”

But here's the truth:
👉 That guilt is a
byproduct of systemic failure.
👉 You're trying to do the job of an entire care team, with little to no support.

Small Step You Can Take Today

Start a simple care log:
Write down what happened, what triggered it, what helped.
Over time, this small daily practice can become your guide — and your power in doctor visits.

📥 Want to See the Bigger Picture?

If this resonates, I created a free guide called the Caregiver Gap Report.

It outlines 7 ways the healthcare system fails dementia caregivers — and how you can start creating a better plan with better tools.
👉
Download it here

🎓 And if you want to go deeper…

I’m hosting a free training in July called Decode the Chaos — all about understanding and managing dementia behaviors in a system that doesn’t make it easy.

The Caregiver Gap Report is the best way to get your invite.
Start there, and I’ll see you inside.

Go to YouTube


🫂 Join the Conversation:

📚 Resources to Support You:

dementia caregiving advice, caregiver burnout, overwhelmed caregiver, dementia care plan, caregiving support, dementia caregiving tools, advocacy-based care, caregiving structure, Medical Assistance Planner, Caregiver Gap Report

Laura is a nurse practitioner, caregiver advocate, and your guide through the often overwhelming journey of dementia care. With over 25 years of experience in the medical field and a deep personal connection to caregiving, her mission is to provide the support, knowledge, and community you need to care for your loved one with confidence and compassion.

Laura Wilkerson

Laura is a nurse practitioner, caregiver advocate, and your guide through the often overwhelming journey of dementia care. With over 25 years of experience in the medical field and a deep personal connection to caregiving, her mission is to provide the support, knowledge, and community you need to care for your loved one with confidence and compassion.

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